18 May 2015 Leave a comment
17 May 2015 Leave a comment
15 May 2015 Leave a comment
We know that many of you already have plans to celebrate World Neurofibromatosis Awareness Day. Some of you will be holding a coffee morning or taking cakes into work, while others are organising a non-uniform day at their child’s school. Some of the more adventurous amongst you will be wearing fancy dress for the day. But we would love to share your day too so if you take any pictures please share them with us – Thank You
To enable people concerned about neurofibromatosis to find solutions appropriate to them The Neuro Foundation charity was founded in 1982 and now has its administrative office in South West London, where a small team of part time staff are based, acting as the support centre for the rest of the team scattered across the UK. The Neuro Foundation works directly with families, funding The Neuro Foundation Specialist Advisor network, a small group of hospital based professionals. The charity also produces written information in a series of factsheets for families and professionals.
The charity is financed through membership, fundraising events, the generosity of trusts and grant giving bodies, and by the valuable support of people like you, who use there services.
The Neuro Foundation is the authoritative voice of Neurofibromatosis in the UK who fund a national Telephone Helpline to answer questions from people who have recently had a diagnosis of neurofibromatosis, as well as those living with the condition, doctors caring for their patients, and teachers and other professionals working within the care sector.
HELPLINE – The Neuro Foundation Helpline, manned by Rosemary Ashton (Abbott), is available on Tuesday and Wednesday ONLY. The number to call is 07866 946 334. Should the line be engaged when you call, then please leave a voicemail message together with your contact details and Rosemary will return the call as soon as she can. If you would like to speak to someone outside these hours, then please call The Neuro Foundation Office on 020 8439 1234. The office is usually open Monday to Thursday from 9.30 – 5.00. If you have an urgent medical problem, then please visit your GP or present at the nearest Hospital Accident & Emergency Department.