Prime Minister David Cameron has pledged to increase funding for dementia research

Walsall Social Services Offer No Dignity

The Prime Minister David Cameron has pledged a new drive by the UK to discover new drugs and treatment that could slow down the onset of dementia or even deliver a cure by 2025.

Speaking at a summit of world health and finance leaders in London, Mr Cameron said immediate action was needed to address a market failure on dementia research and drug development, which had seen global spending on dementia at five times below research on cancer, with only three drugs making it onto the market in the last 15 years.

The commitment comes as the new World Dementia Envoy, Dr Dennis Gillings, warns that if global leaders do not incentivise businesses to invest in research and bring in faster, cheaper clinical trials, they will not meet the ambition to find a cure or disease modifying therapy by 2025.

But much is already happening – with the UK doubling funding for dementia by 2015 and the Medical Research Council using the event to announce the creation of the world’s biggest study group for dementia, involving two million people, alongside a £100 million research pledge from Alzheimer’s Research UK – but that more is needed globally.

In the UK alone there are around 800,000 people living with dementia, worldwide that number is 40 million – and it is set to double every twenty years. So dementia now stands alongside cancer as one of the greatest enemies of humanity. Just as the world came together in the fight against HIV/AIDS, we need to free up regulation so that we can test ground-breaking new drugs, and examine whether the period for market exclusivity could be extended. Without this radical change, we won’t make progress in the fight against dementia.

The Alzheimer’s Research UK campaign will see £100 million investment across initiatives covering diagnosis, prevention and treatment of Alzheimer’s and other dementias. Pledges as part of ‘Defeat Dementia’ include the launch of the Alzheimer’s Research UK Stem Cell Research Centre, a network of Drug Discovery Institutes, worth £30m, housed in academic centres in the UK and beyond to allow promising breakthroughs to be translated towards the clinic and a £20m Global Clinical Development Fund dedicated to supporting phase I and II clinical trials to take potential new treatments into testing in people as soon as possible.

The Medical Research Council has already launched the world’s biggest research cohort for use in dementias research through a new PPP involving 6 biopharma companies, all of whom will be agreeing to commit financially to UKDP in partnership. This Public-Private Partnership ‘the UK Dementias Research Platform’ includes over £16m funding (of which £12m is from the MRC plus company contributions). After a limited exclusion period for consortium partners, all UKDP data will be made available to the global research community.

New research by Professor Martin Knapp at the London School of Economics suggests the annual cost of dementia in the UK is approximately £21 billion. The research also shows that a treatment delaying the onset of dementia by 36 months would save the UK as much as £5 billion a year.

Facts and Figures:

Number of people with dementia in the UK is 800,000 and numbers are expected to double within thirty years.

Current estimates indicate 44.4 million people worldwide are living with dementia but with the world’s populations ageing, the World Health Organisation estimates that this number will nearly double every 20 years, to an estimated 65.7 million in 2030, and 115.4 million in 2050.

The devastating human cost is echoed by its huge economic costs. The total estimated worldwide costs of dementia were US$604 billion in 2010. About 70 per cent of the costs occur in Western Europe and North America.

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First In the world to beat terminal brain cancer’ girl dies

An eight-year-old girl who was dubbed the first in the world to be cured of terminal brain cancer has died.

Claudia Burkill passed away in her sleep four months after getting the all clear from doctors

Today, her mum posted a statement to her daughter’s Facebook page.

“Claudia died peacefully in her sleep in the early hours of this morning. Despite her long illness, ultimately, her death is an incredible shock to all that know and love her,” it read.

Claudia, of Mount Rasen in England, was told she had metastatic pineoblastoma, a malignant brain tumour, at the age of five. On a number of times the family was told Claudia had just weeks to live and had planned her funeral. Then in June, three years to the day since Claudia’s mum first called a hospital about her daughter’s health, the family’s prayers were answered.

“Claudia is cancer-free and no longer classed as terminally ill,”

Mrs Burkill wrote on her daughter’s Facebook page.

“A miracle has happened, it really has. I just can’t stop shaking.”

The family credited the cancer cure to an experimental treatment known as The Milan Protocol.

“We are the luckiest people in this world – Claudia is believed to be the very first little girl in the world ever to survive metastatic pineoblastoma,” Mrs Burkill wrote in June.

“We had lived with a terminal diagnosis with death believed to be imminent for a crazy 694 days. Today is the very first day in a very long time that I can look into the eyes of our four stunning children and ‘know’ that I don’t have to plan the funeral of one of them in the very near future.”

However since June, Claudia has suffered pneumonia and lung issues, which are believed to have caused her death.

Mother’s love ... Andrea Burkill with daughter, Claudia Source

Christmas Light up a Life Concert In aid of Woking & Sam Beare Hospice



@Bev_Minster is lighting up purple on the 1st to raise awareness 4 @OfficialPCA 💜

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Novemeber 5th Spare a Thought To The PTSD Vets

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PTSD, or Posttraumatic Stress Disorder, is a psychiatric disorder that can occur following the experience or witnessing of a life-threatening events such as military combat, natural disasters, terrorist incidents, serious accidents, or physical or sexual assault in adult or childhood.

Post-traumatic Stress Disorder can occur following a life-threatening event like military combat, natural disasters, terrorist incidents, serious accidents, or violent personal assaults like rape. Most survivors of trauma return to normal given a little time. However, some people have stress reactions that don’t go away on their own, or may even get worse over time. These individuals may develop PTSD.

People who suffer from PTSD often suffer from nightmares, flashbacks, difficulty sleeping, and feeling emotionally numb. These symptoms can significantly impair a person’s daily life.

PTSD is marked by clear physical and psychological symptoms. It often has symptoms like depression, substance abuse, problems of memory and cognition, and other physical and mental health problems. The disorder is also associated with difficulties in social or family life, including occupational instability, marital problems, family discord, and difficulties in parenting.

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